Jackson was diagnosed with Congenital Hyperinsulinism (HI) in September 2016 at just four months old. Since then, he has endured countless hospitalizations, spending nearly a year of his life in the hospital while navigating the complexities of this rare and challenging disease.

Now, nearly nine years later, we have come to understand that HI leaves behind so much more than just low glucose. While Jackson has overcome the immediate dangers of persistent hypoglycemia, the long-term effects of HI and its treatments have introduced new challenges, including developmental, neurological, and metabolic concerns. Each year has brought new lessons, obstacles, and victories as we continue to navigate his evolving needs.

Despite these challenges, we still have HI hopes—for a cure, for better treatments, for faster diagnoses, and most importantly, for a long, fulfilling future for Jackson and all those affected by this disease.

For more information on Congenital Hyperinsulinism, visit:
https://congenitalhi.org